(This is a copy of one of our
policy discussion documents used in our training programme)
Throughout your training it has been
emphasised that the vast majority of advocacy is conducted within a
very collaborative and positive atmosphere in which the wishes of
service users are seen by all concerned as very reasonable and
obtainable. Indeed, we have emphasised that the major concern the
advocate has to be aware of acting in or being seen to be acting in
a manner in which it looks as if you are in colluding with service
providers. It is always too easy to be dragged into looking as if
you are another representative of that group of people who's job it
is to assess the best interests of service users.
However it has to be recognised that
there are some cases where conflict does arise between the wishes of
the service user and the views expressed by service providers. This
discussion document centres upon the issues that arise in such
situations. Service providers in many instances express these views
in terms of "the best interests of the user" although in
an increasingly tight purchasing environment it may be in terms of
obtainability. What is wanted may be no great shakes in terms of
wish but may not be obtainable in terms of resources i.e. often
referred to as an unmet need. It should be noted that this can be a
very frustrating position for service providers who wish to obtain
the best for their users but cannot afford to purchase it. Whatever
the reason, sooner or later you may well be in a position where your
user is in conflict with the providers and pressure will be put on
you because of your position as an advocate. This pressure can come
from both the service user who, not surprisingly, wants something,
but also from the service providers who may think such wishes are
dangerous, risky or whatever.
This is a tricky position to be in
and can be distressing for all concerned because:
This situation can really stretch the
resolve of the advocate to represent the service user, especially if
service providers put pressure on the advocate in terms of the dire
consequences if the user's views are put into action. Additionally
you may be accused of leading the user down a particular path or
that the users views are not "informed" or that the user
does not appreciate the down side etc. In simple terms these
pressures have to be resisted not because we just want to be
antagonistic, or that there may not be a bit of truth, but because
as advocates we are there for one reason and we must continue to try
and maintain our role. To deviate for service providers convenience
would be to undermine the whole role of advocacy within the process
of user empowerment. But lets consider this a little further and
look at the consequences.
Firstly we must consider our own behaviour before condemning that of
others. As we consistently state throughout the training process, it
is all too easy to influence service users, if not deliberately, by
subtle inferences etc. You must make sure that you do not become a
too powerful influence in the user's life. You must make sure that
if the user wishes to make INFORMED choices that they have access to
all the facts - good and bad. You should ensure that users are made
fully aware of the barriers to fulfilling their wishes - especially
if the providers are against a particular course of action. Overall
you must make sure that your actions are not giving the impression
that you are able to make it all come true just because you are
involved. This is all pretty tough stuff. Saints you are not, but if
you are to truly represent your user as an advocate you have to
constantly question your own role.
Given all the above it will not
negate the fact that you (and the user that is - don't forget them)
could still be in conflict with some pretty powerful forces.
Now what you have to remember is your
role and it's worth repeating it yet again:
Firstly it is to enable users to make choices and express views by
informing them of their available options, etc. (not always the ones
providers might want them to hear of course - but surprisingly
enough in many instances they do coincide);
Secondly it is to express the users views in an appropriate manner
and in relevant forums to whomever needs to hear. Usually this is
non-controversial and takes many forms (although you can come across
some very feisty consultants!)
However, when conflict arises you are
faced with a third role, which is far trickier to run with. In
"normal" circumstances (the non-conflict environment),
whenever problems or views are aired and decisions that require
action are made the service providers are there, willing and able,
to "do the business" so as to speak. But when a service
user wants something that the providers are unwilling (or sometimes
unable) to supply, you may be faced with a determined service user
who will want you to take on the role of service provider. Of
course, advocacy is not just about voicing opinions. Often you are
asked to fill out forms, accompany people to meetings, arrange
services, etc. However you must be careful not to become a surrogate
provider rather than an advocate! Whilst nobody will perceive such
actions as a problem when everything is hunky-dory - it may well
become A REAL PROBLEM WHEN THERE IS CONFLICT - FOR THE REASONS
STATED ABOVE.
This may put you in a position
whereby the service user cannot move forward on their own wishes
because nobody can provide the sort of support that will enable the
action or wish to become a reality. The service providers refuse on
principle and the advocate because to do so would make them a
provider by default.
On the other hand you have to be
vigilant about your primary role. You have to be aware that you may
be made to feel guilty if the user gets what they want with your
help because you are now responsible for anything that goes wrong.
You have to remember that you do NOT have a 'duty of care' and
others do. If a course of action is so risky to the user or others
then the "authorities" have many powers to restrict the
actions of the user. This may take the form of legal restrictions,
but may also be informal in nature in that they will not facilitate
actions or services they deem, for instance, to be outside of a care
plan. This has repeatedly happened in cases where elderly people
"at risk" are "forced" into nursing homes whilst
their wish is to stay at home. Advocacy has sometimes been
criticised because it allows these people to have a voice to
pressure providers into putting into action care plans that do
enable people to stay in their own homes, often on an experimental
basis. Services specialising in providing advocacy for the elderly
cite these incidents as being a major area of conflict between users
and their best interests as defined by the caring services.
Whilst in such cases it is legitimate to maintain a voice for the
user and to support them in their desires you have to maintain
vigilance on all the points raised above about your actions and how
they can be perceived by both the service user and the service
providers. In the example above you would have to examine your role
if asked to arrange a taxi to get the user home or to arrange for
utility services to be reconnected. In some cases it could be seen
to be part of your role, in others not. Each case is different and
the circumstances will determine the appropriate response from you
as an advocate. It is essential that you ensure that your presence
is needed purely to be an advocate - rather than to enable the user
to do something that others should be providing.
Conflict can also be very positive.
Of course probably nobody (especially your user) will win if a
vulnerable person's future is put in jeopardy in an atmosphere of
conflict and strife. Often conflict can lead to compromises
(remember, we all have to make compromises). It may lead to an
opportunity to get the providers to look again at the package of
care they are offering. It may make the user rethink their own views
in the light of sustained opposition. It may make you rethink the
alternatives that may be viable.
Always remember that you are not
deliberately in conflict. Most providers are attempting to do their
best and have genuine concerns for their users - they are not the
enemy, or there just to make life hard for users. Treat everyone
with respect if you want to be treated the same. Do not make
advocacy a game or part of a larger agenda about 'User Rights'. You
are there to be used by your partner. Do it in good grace.
Such is the potential for conflict
between the advocacy service and service providers, advocates are
advised to always consult with their co-ordinator or manager for
guidance whenever this type of situation arises. In the event that
it stumps them they will talk about the issue with other advocates
and managers at Asist. If in doubt - voice it. It is what we ask of
our users. It's good for them and its good for Asist.
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